Tuesday, November 18, 2008

Over Due

It's been a long time since I posted some pictures... Sorry! Here's the best of the last couple weeks!


First things first, here's the 6 Month Piggie Shot:
Our Little Trick-Or-Treater (She went right to sleep after I took this picture!):

Grandpa playing with Maggie and her rings:
Here she is, discovering a "playmate" in the mirror:

"Hey, do you live here too?"

A small break from the tubie:

Grandma provides lots of entertainment:

Maggie will watch that Star wherever it goes:

And, much to the excitement of Uncle Brent, Maggie just LOVES the RedSox mobile that Dan bought her. It's a big favorite during changing times, and before/after baths:

"Take me out to the ballgame...":

"Hello Green Monsters. You're not scary at all!":


On the Food Front: Maggie's Hunger Strike continues. She will sometimes take 1/2 to 1 ounce by mouth, but that's about it (and not with every feeding). I would estimate that she is 95% tube fed. This is unbelievably frustrating, since it is 10 times worse than when she came home 3 months ago with the NG tube, and 1,000 times worse than 6 weeks ago, when she was eating 3-4 ounces at a time. She will still suck on her fingers and her binky, which is a great sign. This means that she doesn't have a complete oral aversion yet. We are trying to encourage her to take the bottle, but when she refuses, we put it down the tube and try to get her to associate binky sucking with a full tummy. It's a slow process, and I wonder if we are not at the top of the slippery slope. I try not to get ahead of myself, but it's so hard not to worry!
She is otherwise a sweet and happy girl. She even started to giggle this week. Dan was dancing and singing to her, and all of a sudden, this little belly-giggle escaped. It was possibly the cutest thing on the planet! We haven't been lucky enough to catch it on video, but you can be sure that once we do, you'll all get to hear it for yourselves.
There are still a couple of days left to participate in the Vacation Poll! I keep texting Dan with comments about poi, grass skirts, and froofy drinks that come with umbrellas... ahhh, the power of not-so-subtle suggestion!
~Sara

3 comments:

Mom of 24 weeker said...

Sara,

Maggie is beautiful! She is getting so big too! Continued prayers for success in the feeding department.

Melissa

Anonymous said...

Can't cast my vote for any of those choices. I pick Phuket Thailand. If you want to be pampered it is the JW to pick. We have been twice and will go back again and again and again.

UB

Sarah M. said...

how are things going? Thinking of y'all :)