366 days ago, my water broke. 367 days ago, Maggie was born 14 weeks early, weighing 1 pound, 9 ounces.
One year.
My life changed. My dream of a fat pink baby born in the summertime was lost.
Looking back, I feel like I should have acknowledged the signs. I do this for a living, for goodness sake! I was uncomfortable all week. I kept holding my growing belly, saying "God, this round ligament pain is for the birds!" A year ago today, I was on the phone with my mother, laughing because I felt 2 contractions. One in the morning, one in the afternoon. She, of course, panicked. And I remember saying "Jesus, Ma! I'd KNOW if something was wrong!" One of our receptionists caught me holding my belly by the back counter at work and said "I don't like the way you look. I'm worried." And I rolled my eyes, and said "Please, Megan, RELAX!"
I went home from work, one year ago tonight, plopped myself on the couch, and whined to my husband about how uncomfortable I was. I went to bed early, thinking I had overdone it at work all week.
I woke up at 5am. It was one of those times where you dream you're in pain, but when you wake up, you're not sure. I woke up from a dead sleep in pain. I got up, and went to the bathroom. The pain went away. I noticed alot of discharge. I was too tired to turn the light on to look, to sleepy to care. I went back to sleep. I got up again a couple of hours later, and laid in bed, again whining to Dan about how I didn't feel good. I wanted to stay home from work. We both decided it would be better to save my vacation time for after the baby arrived. "Push through it now, and I'll have more time at home later," I remember saying.
I drove to work. Talked to my two best friends, Beth and Liz, on the way in. I remember telling them both that, while I was uncomfortable, I really felt pretty good, and was happy that I was just starting to show. I had shopped for maternity clothes, and was finally ready to wear them. When I arrived in the office, I went to the bathroom again. I noticed alot more wetness and discharge. If I am being honest, for one split second, I knew. I knew my water had broken. But as quickly as I realized it, I convinced myself that I was crazy. Of COURSE my water hadn't broken! I was only 26 weeks pregnant. I was still feeling strange, and I remember telling my medical assistant that I woke up on the wrong side of the bed, and that I hoped we would have an uneventful day because I "wasn't in the mood".
I saw patients all morning. I remember walking from the back exam room, to the front desk, and holding the bottom of my stomach. I felt so much pressure, and a little pain. By 10:30, I was still leaking fluid, and it was enough to bother me. I casually mentioned it to a nurse, and asked if any doctors were coming into the office for afternoon hours. When Elaine told me it was Dr. Kolter, I thought "Oh GOD, I CANNOT have Jim examine me! How embarrassing!" Elaine said she thought that if it was enough for me to bring it up, that I probably should get checked out. The staff and I had ordered salad and pizza for lunch that day. I sat in the office, halfway through my piece of pizza, picking at my salad, when Elaine said Jim was ready for me. "Can't I just finish my lunch first??" I asked. "Come on," she said, "Let's just get it over with."
I lay on the exam table with my feet in the stirrups. Jim came in the room, and I immediately began making excuses, telling him how I was sure it was nothing, how embarrassed I was. I was completely in denial. I watched Elaine's face as Jim did the exam. Her face never changed, she never looked at me. But she pursed her lips together ever so slightly, and I got scared. "Where's the paper? Let me see the nitrazine!" Elaine held up the once yellow paper, now a dark navy blue stained from my amniotic fluid. "Now, this is equivocal," Jim said, "Plenty of other reasons for it to turn color. You know that." They left the room to look under the microscope. I sat on the table, like a good patient. I breathed in and out, knowing that he would come in and tell me that I had a vaginal infection, or that the wetness was just urine. But there was still that part of me that KNEW Maggie and I were in deep trouble. I KNEW. I JUST KNEW.
Elaine and Jim walked back into the exam room. Elaine wouldn't look me in the eyes. Jim leaned back on the counter, facing me. "I'm glad you had me check," he said, "You ruptured." The whole room sort of spun. I put my hand to my forehead. I kept saying "Oh shit, Oh shit, Oh shit." Jim told me I needed to go to the hospital. I asked how long I would have to stay. He said until the baby came, but maybe I would be on bedrest for a while.
I tried to call Dan at work. There was no answer. Elaine tried too. Still no answer. Finally, I got my mom. "Don't freak out," I said, "My water broke." We finally got Dan on the phone. He was closer to the hospital than I was, so I would meet him there. Jim's wife Pam came to get me at the office and drove me to the hospital.
The rest of the day is a blur. My friend Mel was the attending on L&D that day. She was 24 weeks pregnant at the time. We were SUPPOSED to have our babies together over the summer. She hugged me, I was shaking so hard. "I'm so scared. I'm so scared." "I know," she said, "I know you are." Nobody could tell me "It's going to be ok." Because we all thought the worst. My parents came to the hospital. My boss came over from the office to check in on me. "I DID promise to work right up until my water broke, Steve. Remember?" We all sort of chuckled uncomfortably. I was transferred to Lankenau by ambulance; Paoli couldn't take a baby less than 32 weeks. It was rush hour, and the ride between hospitals was RIDICULOUSLY long. I asked the EMT's to put on the lights and sirens. Unfortunately, I didn't count as an emergency...
We nicknamed my hospital room "Camp Maggie". I was going to be on bedrest for 6-8 weeks, at which time, if I went into labor, we wouldn't stop it. Every hour that she stayed in was good for her. The neonatologists came to see us. They gave us the percentages: 70% chance of survival. I told Dan that I didn't want "heroic measures". I cried when I realized I would have to ask the team NOT to resuscitate my baby.
I was eerily calm. When Beth called later that evening, she asked if I had been given any Valium or anything, because I was TOO calm. I think I was just in shock. Or denial. Or both.
I'm not ready to relive Maggie's labor and delivery here. Maybe someday. But not tonight.
I am usually pretty good about knowing that Maggie was "meant" to be here, was "meant" to come in the way that she did, was "meant" to be MY baby. But tonight, I struggle with the grief. I struggle with the guilt. I look at her feeding tube, I watch her cry when we try to feed her, and I can't help but beat myself up. I KNEW. Deep down, I KNEW there was something wrong. But I didn't say anything. I kept denying it to myself. But I KNEW. I will never forgive myself for that.
I hope that, one day, Maggie will forgive me.
~Sara
Wednesday, April 29, 2009
Grief
Posted by Sara at 7:29 PM 3 comments
Sunday, April 19, 2009
Villanova Nursing Alumni Awards
My dear friend, Andrea Hollingsworth, was honored at the Villanova University College of Nursing Alumni Awards yesterday. When she called me a couple of months ago to let me know she would be receiving the prestigious College of Nursing Medallion, I immediately contacted my old choir director, Don, and asked to sit in with the choir. Two weeks ago, when I spoke to him to confirm my participation, he said "Oh yeah, I have you cantoring; you're already printed in the program!" Oh, good, no pressure or anything...
And good thing I came down with bronchitis earlier in the week and couldn't hit anything above a G...
It went relatively well, and it was an honor to be a small part of Andie's special day. Maggie got to go to church for the first time, and was very good the whole time. She even rubbed elbows with the University muckety mucks at the reception afterwards and was, as usual, the light of the party!
Here's Maggie in the front yard yesterday morning. I don't think she liked the feeling of grass on her face; she looked like she was trying to swim:
Maggie's hair looked so red in the sunshine:
Later that night, here's me singing at the Alumni Awards:
Don let Maggie play on the organ after the Awards Ceremony. I think music runs in the family!:
Posted by Sara at 2:04 PM 0 comments
Monday, April 13, 2009
Maggie's First Easter
We took Maggie to Nana & Pa's house in CT for Easter Weekend. We had a great time visiting with family and friends! Here's the pictorial...
Maggie got great use out of the swing we borrowed from Frank & Sarah:
We got together with many of our friends, but Maggie and Rachel Milheiro got to meet for the first time. They are already planning lots of tea parties!:
Easter Morning was, in a way, more exciting than Christmas! Maggie is so much more aware of her surroundings, and really enjoyed all of the treats the Easter Bunny brought her. Here she is in the ears I found at Target:
Nana and Pa made sure the Easter Bunny got Maggie this barnyard popup toy:
She might wear this outfit for her birthday party:
Maggie loves her Baby Froggie:
My Sweet Baby in her Easter bonnet:
Almost steady enough to sit independently:
Maggie's PA Easter Basket-- made by my friend Paula at work, filled by the Easter Bunny (Grandma Midwood):
The Easter Bunny brought another popup toy for Maggie. This one is Sesame Street! She discovered this toy at the Hershey Feeding Clinic, and it was clear she HAD to have one of her own:

~Sara
Posted by Sara at 9:54 PM 1 comments
Wednesday, April 8, 2009
Sunday, April 5, 2009
Hershey
I know you all are dying to hear about our time at Hershey. Sorry I've been remiss in updating, I'm not sure where the time goes....
We went to the Hershey Feeding Clinic on March 16th. Our wonderful OT, Allie, was great enough to come along (on her day off, mind you) to be an extra set of ears. The drive to Hershey Medical Center was pleasant, through the farms of Amish country. It took us a little over an hour, which is about how long it takes to get to Philadelphia from here. However, instead of sitting in a city traffic jam swearing at other drivers, we admired sprawling farmlands.
We met with the Feeding Center director, a Speech Pathologist, and a Nutritionist. They took a lengthy history of Maggie and then observed me feeding her. They all agree that some of Maggie's problem is behavioral, but alot of the unresolved medical issues with her vomiting are slowing down her progress. The nutritionist adjusted her calories (we're up to 24 calorie formula) and volume (up to 6 ounces per feed), and they were able to get us an appointment to see the GI specialist as well. I asked Dr. Williams about the GTube. He said that while he does think Maggie will be able to make progress with the NGTube still in place, it would actually be EASIER to get her off of the GTube. I was surprised by this, but the explanation makes alot of sense. If we take away the sensory component of the NGTube-- gagging, irritation, tape, reinsertions-- perhaps Maggie will find eating more enjoyable. We agreed that we will wait until after her birthday to make the final decision, but that the proverbial writing is on the wall.
I am alternately resigned and terrified. Maggie is so much more aware of her surroundings and absolutely recognizes the tube for it's unpleasantness. She is such a happy baby, but when I lay her down on the changing table to reinsert the tube, her whole face crumbles. It breaks my heart. If her feeding issues aren't going to be 100% resolved soon (and the likelihood of this is slim), getting a GTube that she is otherwise unaware of might be best for all of us. I just can't really believe it's come to this.
One of the best parts about the Feeding Center appointment was that I left there with a clear plan. Each of the providers: Dr. Williams, Speech, and Nutrition, gave me a written plan. Actually, they gave me multiple copies of the plan! I have phone numbers to contact them with. I have email addresses to send questions to. I left with a clear understanding of what's happening and what's coming next. I finally feel like someone is taking charge of this, and I can finally LET them. I have been driving this bus for too long, and I'm tired. I just wanted someone to take some of the burden from me. I am thankful to finally feel like I have guidance.
On Thursday, we went back out to Hershey to meet with the GI Specialist. I had been unhappy with our GI from CHOP for a while, and after such a positive experience with Hershey, I was looking forward to a second opinion. Our CHOP GI had recently restarted Maggie's reflux medications-- first Zantac, and then when that wasn't working, back to Prilosec. Unfortunately for our Peanut Face, these medications make her sicker. (As if I thought that was even possible!) On medications, she vomits 10x more than off the meds. But the CHOP GI didn't really seem to believe me. That was the first item on the agenda with the new GI. He listened to what I had to say, thought for a moment and said "Well, let's stop the meds then." Now, LOGIC is something I can get behind!! Dr. Field explained that the medications will NOT stop Maggie from having reflux or stop the vomiting. The medications neutralize the acid in Maggie's stomach, so that her esophagus doesn't get irritated. When we had the endoscopy, there was very little evidence of any irritation. Reflux usually resolves as the baby gets older-- between 12 and 18 months of age. So we're almost there. But giving her medications that increase her vomiting makes ZERO sense. Dr. Field thinks that much of Maggie's problem is motility related. We're stuffing her full of formula to help her gain weight, but it's not moving along in her system. If we can take care of the constipation, then her reflux may improve. We talked about Maggie's upper GI series from a while back, and how I was told that she did NOT have delayed gastric emptying. Dr. Field asked how much volume Maggie was given during the test. When I told him it was only an ounce and half, he said that he's not convinced she doesn't have some delayed motility. We are asking her system to process 6 ounces at a time-- WAY more than was given during the testing. Based on her symptoms, he felt she does have motility issues. So we left there with a prescription for some Lactulose, that will hopefully help Maggie overcome this longstanding constipation issue.
We will follow up with the Feeding Center and GI in about a month. In the meantime, we'll keep working with OT and Speech with her feedings and motor skills.
Otherwise, Magoo is her happy little self. She is becoming more and more verbal in the last week or so. Lots of P's, B's, G's, M's, and D's! I walk her around, saying "Mamamamamama!" in the hopes it will be her first word. (I know it's usually Dada, but a Mommy can hope, right?) She laughs all the time, and has started to "play" a bit with Ben. She'll reach out for me when she sees me, and if she's tired of being in her swing, she'll whine and let me know. When I go to pick her up and say "Upie Upie!", she grins that toothless smile and lifts her arms. She is such a joy. Looking at her now, despite the feeding difficulties, it's hard to believe where she started.
~Sara
Posted by Sara at 1:17 PM 2 comments






